A new robot-assisted video game therapy is helping children with Spinal Muscular Atrophy (SMA) rebuild strength. Six children in China, aged 6-10, showed significant improvement after just a few weeks, enabling some to stand from a chair for the first time.
NICE recommends NHS funding for nusinersen (Spinraza) and risdiplam (Evrysdi) for spinal muscular atrophy (SMA) patients in England, Wales, and Northern Ireland, offering improved survival and quality of life for hundreds of children with this rare genetic disorder.
Spinal muscular atrophy patients have urged the Hong Kong government to expand subsidised medicine options for adults to increase their chances for a better quality of life, with some saying their condition deteriorated after growing up without affordable care. Lui Man-lam, president of the Hong Kong Neuro-Muscular Disease Association, said at a press conference on Sunday that while oral medicine subsidies for those aged 25 or above were rolled out early this year, adult patients still lacked...
