Multiple sclerosis patient living in 'horrific pain' due to UK-wide drugs shortage

A woman with multiple sclerosis (MS) has said she is living with "horrific pain" after being unable to get a drug she uses to manage her condition.

Jill Kenning has used Nabilone for 17 of the 18 years since she was diagnosed with MS and said the drug had been vital for managing her pain and helping her live a normal life.

She said she had spent most of her time in bed since running out of the drug last Tuesday.

Northern Ireland's devolved health department said there was disruption to supplies of the drug across the UK, meaning Nabilone was out of stock with wholesalers and not expected to be available again until December.

Pharmaceutical manufacturing company Brown & Burk UK Ltd, which supplies the drug to the UK, said they are doing "all that [they] can at this point in time" amid "technical issues".

According to a tracker published by the industry reference guide MIMS, the average number of drugs in short supply in the UK has trended upward this year.

The number of drugs in short supply reached 157 this week, up from a low of 107 in January.

Kenning, from Coleraine in County Londonderry, was diagnosed with MS in 2008 after experiencing problems with her sight.

She subsequently developed numbness down the left side of her body and was treated by a neurologist.

After a severe relapse, which resulted in a four-week hospital stay, she was prescribed Nabilone which she said made a massive difference to her quality of life.

"It helps me basically that I can get out of bed in the morning," she said.

But she said that without the drug she experienced constant pain in her eye, which she compared to being "stabbed with a hot poker".

After contacting her health trust for her regular repeat prescription, she said she was told there were no supplies of Nabilone available.

She was told to contact her neurologist and has since been prescribed other medication.

Kenning said the alternatives had not been effective and that her health had declined to the point where she had to stay in hospital for several nights.

"I don't want to be here any more because the pain is so bad," she said.

"I don't know how to describe it.

"I have been living on painkillers... I can't sleep, I'm sick, I'm not eating."

Kenning said more should have been done to prepare patients for the disruption.

"How do I live my life? How do I cope with the pain?" she said.

"I'm not only fighting for me, I'm fighting for all the other patients that are on this drug."

Brown & Burk UK Ltd said it "puts patients' care first" and it is "hoping" to get Nabilone stocks into the UK by the end of November, ensuring it reaches users by mid-December.

The manufacturing of the drug's active ingredient "is extremely challenging", he added, and requires "special, dedicated, experienced people" and equipment, Managing Director Preetham Hiremat told BBC News NI.

Hiremat also highlighted that the global need of this active ingredient "is only in [the] few grams a year", which "becomes all the more challenging".

"We have had technical issues and have had to manufacture the active ingredient material all over again and hence we are in this situation."