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Back唇顎裂女孩陳以真畫作登公益桌曆 媽媽感動:很大的肯定
唇顎裂女孩陳以真畫作登公益桌曆 媽媽感動:很大的肯定
Health
自由时报13 hours agoHealth3 min readChina

唇顎裂女孩陳以真畫作登公益桌曆 媽媽感動:很大的肯定

羅慧夫顱顏基金會舉辦2027公益桌曆頒獎典禮暨義賣記者會,展現海内外顱顏患者的才華與夢想。

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6歲唇顎裂女孩陳以真以作品「有你一起吃飯真好」入選羅慧夫顱顏基金會2027公益桌曆。基金會於12日舉辦頒獎典禮暨義賣記者會,展現台灣及海外顱顏患者的創作與故事。

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Why It Matters

羅慧夫顱顏基金會自2012年起向先天顱顏患者徵稿製作公益桌曆,至今已持續23年。

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曾經連握筆都有些困難,如今畫作卻登上公益桌曆。6歲唇顎裂女孩陳以真從小學習速度較慢,在家人陪伴下一次次練習握筆、畫畫,逐漸愛上用色彩表達自己。今年她以一家人圍坐用餐為主題,畫下「有你一起吃飯真好」,作品獲選羅慧夫顱顏基金會2027公益桌曆,媽媽感動地說,這次獲獎對以真而言,是很大的肯定。

羅慧夫顱顏基金會今(12)日舉辦「有你真好」2027公益桌曆頒獎典禮暨義賣記者會,今年共有台灣及海外12位顱顏創作者作品入選,包括來自蒙古、柬埔寨、越南、菲律賓及尼泊爾等地的孩子與青年;公益桌曆今年邁入第23年,自2012年起向先天顱顏患者徵稿,至今已有168位顱顏創作者獲獎。

以真患有雙側唇顎裂及小眼症,媽媽回憶,以真小時候連握筆都有些困難,經過持續練習後,才慢慢愛上畫畫。現在她常主動拿起紙筆創作,用繽紛色彩描繪心中的世界,也藉由畫畫表達自己的想法與感受。

這次入選作品「有你一起吃飯真好」,畫的是一家人圍坐用餐的溫馨場景。媽媽說,自己最驕傲的不是孩子學得多快,而是以真從來沒有放棄,「很多事情她學得比較慢,但都願意一次一次練習。」她也想告訴女兒:「妳已經很棒了,我們不需要和別人比較。」只希望孩子健康、快樂長大,按照自己的步調探索世界。

另一名入選者、11歲柬埔寨顎裂女孩索萬娜(Sovanna),則在活動中演唱柬埔寨童謠「珍惜時間」。她曾因說話不清,過去曾遭同學模仿、嘲笑,一度不敢在人前開口,目前在基金會資助下持續接受語言治療。如今她不僅勇敢站上舞台唱歌,更希望長大成為醫師,幫助更多人。

13歲的越南唇顎裂少年阮文大成也有工程師夢。他曾因臉部外觀及說話方式與同學不同,曾遭模仿、嘲笑,但在家人陪伴下持續接受手術及治療,也努力求學。他說,希望未來成為像輝達執行長黃仁勳一樣的工程師,用知識與創新改變世界。

基金會執行長陳依伶表示,公益桌曆發行至今邁入第23年,希望透過繪畫讓外界看見顱顏患者的潛力,也陪伴他們建立自信、追逐夢想。今年擔任愛心大使的藝人林予晞則發揮攝影專長,親自為獲獎孩子拍攝紀念照。

基金會表示,「有你真好」2027公益桌曆義賣所得將用於支持顱顏患者相關服務,民眾可至基金會公益桌曆訂購頁面購買。

Open Questions

  • 公益桌曆的詳細訂購方式與售價為何?

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This article was originally published by 自由时报.

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