The boy Kauan should no longer undergo heart surgery in São Paulo. The information was confirmed by the child's mother, Laise Sousa, this Friday (2). On a social network, she opened up about the situation and said she felt as if she had fought so hard to “die on the beach”.
"But God knows I tried my best. His risk, if you move him and he dies, is very high. So, there's nothing we can do for him," lamented the mother in a video on social media.
In the most recent case of the mother's fight for her son's procedure, she chained herself to the door of the Palmas General Hospital (HGP). On the same day, he left the place and chained himself in front of the Public Prosecutor's Office, asking for his son to be transferred. The family is from Paraíso do Tocantins, in the central region. The case has been going on since 2024, when Laise requested treatment away from home (understand the case below).
Then the family managed the transfer last week. In the capital of São Paulo, the boy underwent a series of tests after being admitted to the hospital. However, in a video published on social media this Friday afternoon (2), the mother said that the doctors held a meeting and informed that there was no indication for surgery.
The child would need surgery called Fontan, a procedure recommended for patients born with only one functional ventricle in the heart.
According to the mother, the medical team informed that there is nothing to do and that mother and son must return to Tocantins. She stated that the priority now is to provide comfort to her son.
"Understanding and accepting. Understanding a diagnosis like this is not easy. And knowing that he will stay at home now and, when God wants to take him, God will, right? In his time."
In a statement, the São José do Rio Preto Children's and Maternity Hospital reported that "after evaluating the patient, the medical team provided all information to the patient's family." It also stated that the institution is unable, by law, to inform, comment or share any data or circumstance that involves the patient and could expose data about him.
Remember the case
The family is from Paraíso do Tocantins, which is about 60 km from Palmas. The case has been going on since 2024, when Laise requested treatment away from home. In July 2025, the Court ordered the State to transfer the child to the Hospital da Criança e Maternidade de São José do Rio Preto, through an air ICU, with the right to a companion and the cost of the stay.
A year later, the Court issued a new decision, blocking the amount necessary to carry out the surgery.
Laise chained herself to the HGP gate on the morning of September 9th. On the same day, she left the place and chained herself in front of the Public Prosecutor's Office, asking for her son to be transferred.
At the time, the State Department of Health reported that the patient had been monitored at the Municipal Hospital of Araguaína and that, after medical evaluations, it was indicated that the Fontan surgery would be contraindicated in his case, due to the child's clinical conditions, which had compromised vascular access and clinical fragility.
On September 12, 2026, the State informed that the patient's transfer was approved and was awaiting acceptance from the destination unit, in São Paulo. Kauan was transferred to São Paulo 14 days later.
