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Back年輕型失智症家庭心路歷程:50多歲夫確診阿茲海默症,妻積極求助重拾穩定生活
年輕型失智症家庭心路歷程:50多歲夫確診阿茲海默症,妻積極求助重拾穩定生活
Health
自由时报33 minutes agoHealth5 min readChinaView translation

年輕型失智症家庭心路歷程:50多歲夫確診阿茲海默症,妻積極求助重拾穩定生活

羅小姐分享先生50多歲確診年輕型失智症的6年抗病歷程,呼籲社會重視早期警訊並積極尋求醫療與照護資源。

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羅小姐在國際失智症月衛教記者會中分享,其夫呂先生50多歲確診年輕型失智症(阿茲海默症)後歷經精神行為症狀與家庭衝突,透過規律醫療、口服液劑及非藥物治療,如今病情穩定並能流暢與人互動。

AI-generated summary

Why It Matters

羅小姐的先生在50多歲時確診阿茲海默症,經歷6年抗病歷程,透過醫療與非藥物治療維持穩定。

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羅小姐積極為失智症先生媒合各式才藝與社交活動。如今先生已能流暢地與親友互動,外人幾乎看不出病容。

(病友提供)

〔記者侯家瑜/台北報導〕許多人誤以為失智症只是正常老化或老年人的專利,但對年輕型失智症家庭而言,初期的輕忽與隨之而來的精神行為症狀,往往伴隨著難以言喻的風暴。病友家屬羅小姐今(10)在國際失智症月衛教記者會中,分享先生(呂先生)從發病、確診到全家共同抗病6年來的心路歷程,呼籲社會大眾重視失智症早期警訊。

羅小姐回憶,先生原本從事業務工作,性格活潑且處事穩定。然而在民國109年確診前一年,先生開始出現異常徵兆:曾在熟悉的中和地區騎車打轉1、2個小時找不到路,一年內健保卡弄丟補辦超過6次、手機弄丟2、3支,甚至自己把機車停好卻忘記位置,以為被偷而跑到警局報案。

由於先生當時才50多歲,年紀尚輕,完全沒有「病識感」,相當抗拒就醫。羅小姐帶著先生輾轉看過精神科、台大、榮總、亞東等各大醫院,求診過程屢屢受挫。直到她主動聯繫失智症協會諮詢專線,在社工評估有8成機率為失智症後,轉介至神經內科門診進行詳細檢查,才正式確診為阿茲海默症。

確診初期,除了健忘,更讓全家崩潰的是失智症的精神行為症狀(BPSD)。羅小姐指出,先生情緒變得極度暴躁,還出現從社區回收場撿雜物回家的囤積癖。有一次兒子下班買飯回家,因動作匆忙不慎讓食物掉落,先生竟認為兒子對他不尊重、挑釁,當場暴怒將桌上食物往沙發狂砸。

隨後父子爆發激烈肢體衝突,先生抓狂跳起並將兒子壓制在地、緊掐脖子,羅小姐一人根本拉不開兩個大男人。好不容易將兩人分開後,先生衝出家門,竟主動打110報警指控家裡「家暴」。當警察找上門時,所幸羅小姐隨身備有醫師開立的診斷證明書,向警方出示並解釋先生因生病導致情緒失控,才化解了一場家庭危機。

經歷嚴重的衝突事件後,羅小姐主動向醫療與失智照護資源單位反映困境,尋求專業協助,並由醫師評估後在既有治療基礎上加入口服液劑。她分享,口服液劑可以在醫師評估下靈活調整劑量,面對情緒波動不穩定的失智症患者,治療上更具彈性。

除了規律服藥,羅小姐更積極導入「非藥物治療」。因自身仍須上班,她申請了外籍看護協助日常陪伴,並安排先生週一至週五參加多元課程,包括運動課、失智社區據點活動、手作與認知刺激課程等,每年還會帶先生出國旅遊,讓他不與社會脫節。

如今確診已邁入第6年,羅小姐欣慰地表示,雖然先生的短期記憶依然持續退化,但日常生活功能維持得相當穩定,一般人短時間交談甚至難以察覺他罹病。

羅小姐(左)感性分享,照顧者不能孤軍奮戰,一定要積極向外尋求資源、參加照顧者支持課程與喘息活動。(記者侯家瑜攝)

Open Questions

  • 口服液劑治療的具體醫學成效為何?
  • 台灣年輕型失智症家庭的整體資源分布情形?

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This article was originally published by 自由时报.

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